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Dementia & Brain Health
Whether you are living with dementia or supporting someone who is, there is help available.
With the right resources, it is possible to maintain a good quality of life and live well.
I am Living with Dementia
Recieving a dementia diagnosis can feel overwhelming, but you can still be a part of your care. It helps to create a team that includes your doctors, community services, family and others who care about you. They can support and help you make choices so you can keep living your life and doing things on your own as much as possible.
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Understand your Next Steps
- Read the tip sheet, You Just Received a Diagnosis, Now What? for helpful next steps and guidance after a diagnosis.
- Consider talking about your diagnosis when you are ready. The Alzheimer's Society UK has a helpful guide, Telling People About Your Dementia Diagnosis that can support you through the process.
- Review information from the Alzheimer's Association on Building a Care Team.
- Use the Dementia Values and Priorities Tool to help you communicate your wishes regarding your future care.
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Seek Support and Care Planning
Thinking about the future is important. Everyone is different, so your choices may be too. When you know what matters to you, it’s easier to decide what to do. There are people who can help you along the way. The following organizations provide support for ALL types of dementia.
- Alzheimer's Association San Diego/Imperial Chapter Website | (800) 272-3900
Description: You can talk to someone 24/7, find local programs, and join activities that help you stay informed and connected. Read about ways to take care of yourself.
- Alzheimer's San Diego Website | (619) 492-4400
Description: You can join educational classes, support groups and seek expert guidance about your dementia. They also offer social and fun activities.
Description: This center offers opportunities to join research and connect with experts to learn more about your diagnosis. Check out their "Quality of Life" programs.
Description: Teepa Snow is a dementia expert who shares helpful tips and support. Her websites offers tools, videos and advice to live well with dementia.
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Connect and Engage with Others
You are not alone in your diagnosis—there are others you can connect with who are also living with dementia. Engaging with others can offer a supportive community and bring meaning, joy, and purpose to your life.
Description: This organization is led by people living with dementia. This group focuses on education, advocacy and peer support. It's a space where you can share your voice, raise awareness, and be part of changing how the world sees dementia.
Description: A community led by persons living with dementia that offers events, programs and activities where you can connect, share ideas, and stay active.
Description: An online message board where you can ask questions, read stories, and connect with others. It's a helpful space if you're looking for support, tips or just want to hear from people who get it.
I Support a Person Living with Dementia
Supporting someone with dementia may not have been part of your plan — but here you are. You might be facing things you don't understand or situations you’re not sure how to handle. Just like the person you're caring for needs support, so do you. You are not alone, and you don’t have to do this alone.
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Learn About Dementia
One of the best ways to support a person living with dementia is to learn more about it. Dementia affects more than just memory; it can impact behavior, communication, and daily routines. Understanding these changes can help you provide more effective and compassionate support.
- Alzheimer's Association San Diego/Imperial Chapter Website | (800) 272-3900
Description: Offers a wide range of free educational programs for caregivers and families, covering topics like understanding dementia, managing challenging behaviors, and planning for the future. Programs are available online and in person, along with support groups and 24/7 hotline.
- Alzheimer's San Diego Website | (619) 492-4400
Description: Provides local educational classes, workshops and resources tailored for caregivers. They also offer free support groups and care navigation.
Description: Offers practical, video-based trainings and resources to help caregivers better understand dementia and provide person-centered support. Teeapa's approach focuses on empathy, connection and using simple techniques to reduce stress for both the caregiver and the person living with dementia.
Description: Check out their series of videos produced by the UCLA Alzheimer's and Dementia Care program to help caregivers how to better care for a person living with dementia ranging from a variety of topics including aggressive behavior, anxiety, depression, hallucinations, home safety, refusal to bathe/take medications, repetitive behaviors, inappropriate behaviors, sleep disturbances, sundowning and wandering.
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Find Caregiver Support and Respite Services
Respite is temporary relief for caregivers. It gives family members a break from caregiving duties, helping them recharge and reduce stress. Respite can take many forms, such as in-home care, adult day programs, or short-term stays in care facilities.
Description: A network of local organizations and agencies working together to support family caregivers. They offer free conferences, community resources, webinars, and referrals focused on caregiving.
- Jewish Family Service Website | (858) 637-3210
Description: Offers a wide range of services for persons living with dementia, including a specialized dementia day program that provides a safe and engaging environment.
- Glenner Center Website | (800) 736-6674
Description: Offers adult day programs specializing in dementia care, providing a safe and engaging environment for individuals living with dementia and respite for their caregivers.
- Southern Caregiver Resource Center Website | (858) 268-4432
Description: Provides services for caregivers, including those supporting a person living with dementia. Services include free respite care, legal and financial counseling, support groups, education, and personalized care planning.
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Legal and Healthcare Services
You cannot predict the future, but you can plan for the evolving needs of someone living with dementia. Proactive planning is necessary to navigate care decisions and support quality of life at every stage.
- Elder Law and Advoacy Website | (858) 565-1392
Description: Provides free and low-cost legal services, Medicare counseling, and elder rights advocacy to support and protect older adults and their caregivers in San Diego and Imperial Counties
- Legal Aid Society Website | (877) 534-2524
Description: Provides free legal help with housing, healthcare, public benefits, and planning for future care.
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Safety and Risk Reduction
For individuals living with dementia, finding the right balance between safety and independence can be challenging. Below are some tools and interventions that can support autonomy while helping to reduce risk.
Description: Learn more about fall risk factors, prevention strategies, and community-based resources such as minor home repair.
Description: This is a free registry that helps law enforcement reunite persons living with dementia with their home if they become lost. The enrollees information is accessible to first responders to ensure a safe return home.
Description: It may be time to explore other care options if a person living with dementia is no longer safe at home. Choose Well San Diego is a web-based tool designed to help individuals and families find and compare licensed assisted living facilities in San Diego County. It provides detailed information on facility quality, services, and amenities..
Handouts and Materials
Aging & Independence Services, in collaboration with local community partners have created resources that aim to enhance understanding, support and quality of life for persons living with dementia. These tools are designed to promote dignity, reduce stigma and connect families to helpful services across San Diego County.
The Caregiver Handbook is a comprehensive booklet created by the Caregiver Coalition. It includes valuable information and practical tips to support caregivers caring for a person living with dementia.
The Dementia-Friendly Activities Toolkit was created by the Social Participation and Dementia & Brain Health AgeWell Teams. It offers practical strategies to help keep persons living with dementia engaged and connected. It includes a variety of activity ideas that can be tailored to the person's interest and abilities.
The Communication Card is a helpful tool to use when you're out in public with a person living with dementia. It allows you to communicate discreetly and respectful, letting other knows that the person may need extra time, patience or a different approach.
I am Interested in Dementia-Friendly Communities
Dementia-friendly communities are places where people living with dementia are understood, respected, and supported. Small changes can make a big difference— whether you are a business, faith group, restaurant or community member. By learning more and making simple adjustments, you can help people living with dementia feel safe, included and valued.
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Learn about the Dementia Friends Program
Aging & Independence Services is the regional lead for the Dementia Friends program. The Dementia Friends programs provides one hour, interactive educational sessions that aim to change the way people think, act and talk about dementia. In the sessions, participants will:
- Understand signs and symptoms of dementia.
- Learn dementia-friendly communication tips and interactive strategies.
- Find ways to engage and support persons to live well with dementia.
Anyone can request a free Dementia Friends session, and content can be tailored to meet the needs of diverse groups, including professionals in various sectors. Participants recieve a certificate along with supplemental materials and resources.
The continuous training of community members and professionals on ADRD and ways to support those who are impacted. To date, there have been hundreds of Dementia Friends trained by local leaders (Dementia Friends Champions). To request a Dementia Friends session online or in-person, e-mail CarolynM.Kendle@sdcounty.ca.gov.
You can now become a Dementia Friend on-demand! Visit https://dfamerica.org/become-a-dementia-friend/ to earn your certificate.
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Join the Age Well Dementia & Brain Health Team
The Dementia & Brain Health Team is a community team that brings together individuals and agencies to educate the wider community about dementia and brain health, dementia-friendly practices and resources to support persons living with dementia and their care partners. The Dementia & Brain Health Team is committed to their vision in ensuring that:
San Diegans have the information need to reduce their risk of Alzheimer's disease and related dementias (ADRD); residents living with ADRD receive the highest standard of clinical care; individuals living with ADRD are well cared for a supported by "dementia-friendly" communities; and family member have the support they need to care for their loved ones.
Meetings occur virutally on zoom, every third Tuesday of every other month from 10:30 AM - 12:00 PM.
- Zoom: https://sdcounty-ca-gov.zoom.us/j/89414051359
- Meeting ID: 894 1405 1359
- Passcode: 196992
Email CarolynM.Kendle@sdcounty.ca.gov for more information or to be added to the email contact list.
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Explore Dementia-Friendly Sector Guides
Every part of the community has a unique role in supporting those living with Alzheimer’s disease and related dementias. The resources listed below are designed to support sectors in their work towards becoming more dementia-friendly. In a “dementia-friendly” community, people with dementia live as independently as possible and continue to experience a sense of inclusion and dignity.
- Dementia-Friendly Tips and Elder Abuse Prevention for Faith-Based Communities
- Dementia-Friendly Tips and Elder Abuse Prevention for Libraries
- Dementia-Friendly Tips and Elder Abuse Prevention for Banks and Financial Institutions
- Dementia-Friendly Tips and Elder Abuse Prevention for Older Adult Communities
- Dementia-Friendly Tips and Elder Abuse Prevention for Transportation Providers
- Dementia-Friendly Tips and Elder Abuse Prevention for Legal Professionals
- Dementia-Friendly Tips and Elder Abuse Prevention for Restaurants and Food Establishments
- Dementia-Friendly Tips and Elder Abuse Prevention for Healthcare Providers
Learn More About Our Community Dementia Efforts

The Alzheimer’s project began in 2014 when Dianne Jacob, then Chairwoman, made a call to action to address the Alzheimer’s epidemic and its toll on families, communities, and health care systems. Today, The Alzheimer’s Project is an initiative moving vertically from educating the community to developing policies that address the challenges brought on by Alzheimer’s disease. Working all over the region, The Alzheimer’s Project collaborates with dedicated partners who continuously support researchers in their quest to find effective treatments and a cure for the growing number of San Diegans affected by this disease.
The Alzheimer’s project began in 2014 when Dianne Jacob, then Chairwoman, made a call to action to address the Alzheimer’s epidemic and its toll on families, communities, and health care systems. Today, The Alzheimer’s Project is an initiative moving vertically from educating the community to developing policies that address the challenges brought on by Alzheimer’s disease. Working all over the region, The Alzheimer’s Project collaborates with dedicated partners who continuously support researchers in their quest to find effective treatments and a cure for the growing number of San Diegans affected by this disease.
National Programs and Resources
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Forr Different Types of Dementia
Dementia is a general umbrella term used to describe a collection of symptoms affecting memory, thinking, and behavior. However, there are many specific types of dementia that can cause these symptoms. It's important to learn about the different types to better understand the condition and how to support those affected.
- Alzheimer’s Association | alz.org
- Support Line: 800-272-3900
- Association for Frontotemporal Degeneration | theaftd.org
- Support Line: 866-507-7222
- Creutzfeldt-Jakob Disease Foundation | cjdfoundation.org
- Support Line:: 800-659-1991
- Huntington’s Disease Society of America | hdsa.org
- Support Line: 800-345-4372
- Lewy Body Dementia Association | lbda.org
- Support Line:: 800-539-9767
- Parkinson’s Foundation | parkinson.org
- Support Line:800-473-4636
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For Caregiver Support
- AARP | aarp.org/caregiving
- Support Line: 877-333-5885
- Caregiver Action Network | caregiveraction.org
- Support Line: 855-227-3640
- Eldercare Locator | eldercare.acl.gov
- Support Line: 800-677-1116
- Family Caregiver Alliance | caregiver.org
- Support Line: 800-445-8106
- National Respite Network | archrespite.org
- Support Line: 706-256-2084
- Rosalynn Carter Institute for Caregiving | rosalynncarter.org
- Support Line: 229-928-1234
- VA Caregiver Support Program | caregiver.va.gov
- Support Line: 855-260-3274

